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The Cornelia de Lange Syndrome (CdLS) Foundation is a nonprofit [501 (c) (3)] voluntary health organization based in Avon, Connecticut (USA). The Foundation provides a host of services that attract, educate, and unite families touched by this rare birth disorder which causes individuals to develop at a slower rate, both physically and mentally. Each day, we enlist the support of hundreds of dedicated volunteers throughout the United States and the expertise of professionals from the fields of genetics, medicine, education, and psychology in our collective effort toward advancing global recognition and societal understanding of the syndrome. Once you become familiar with a few features common to the syndrome, you will likely recognize the faces of people with CdLS forever. And once you come to know the faces of people with Cornelia de Lange Syndrome, we ask... 'How could you ever forget?' The Cornelia de Lange Syndrome Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.

A support group for families who have children affected by disorders involving chromosome 22.

Chromosome Deletion Outreach, Inc. (CDO) is a non-profit organization for families affected by any type of rare chromosome disorder: deletions, translocations, trisomies, rings and inversions

Chromosome Help-Station!

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Incontinence products-supplies including adult diapers, plastic pants, and mattress covers available in our online incontinent supply catalog.

†† June 10-13, 2004† Rheingoldhalle Mainz, Germany††

Genetic Syndrome Support Groups Online Directory

Our Trisomy 18 Angel - Abigail Renee. This site was created to help other families who have been given a Trisomy 18 diagnosis.

SOFT (UK) Home Page

A resource site for families of babies diagnosed with T18, Trisomy 18, Edwards syndrome to get help with building or listing a website. Telling your unique story on the web can help others.

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Unique - Rare Chromosome Disorder Support Group for families affected by any rare chromosome disorder : deletions, duplications, translocations, trisomy, monosomy, rings, mosaic, inversion, isodicentric, microdeletions, tetrasomy, monosomy, congenital, inherited

CMT-Support

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